Solid facts: 1) South is about 10-15 years behind medicine for the most part (being kind) and 2) if you’re going to have a test for something exotic you should do your homework.
The endocrine doctor ordered an MIBG scan because he really felt it was the best procedure and diagnostic test for what’s going on. I’ve had to fight the schedulers to get it. I’ve talked to the radiologist to get it approved because of my Iodine allergy, researched the test and which of my medicines to stop. Radiology stopped it and rescheduled it once. Radiology didn’t advise the doctor what thyroid blocking agent to use so I did that. I researched hard to see how/what Cleveland Clinic, UCLA and MD Anderson use and came up with Lugol’s solution.
Arose this morning at 6 and took 50mg of Prednisone and 50mg of Benadryl. Ever the dutiful nurse, I’d looked up all the above…..but being the PATIENT I trusted someone else’s calculations of how much Lugol’s solution to take. DA move on my part! LOL. It’s funny now but it wasn’t funny this morning. They prescribed 8 mL which is about 1 and 2/3 teaspoons full of the solution for me to take three days in a row, starting today. I swallowed that potassium iodine solution down and immediately followed with a ton of water it was horrible! Salivary glands went wild my stomach contracted and I spent several minutes fighting my body trying desperately not to reject the solution. It seemed like an hour but I lost the battle and hurled up some of it. My mouth is burned, my tongue is burning, my throat is burning and can’t taste anything! My lips are still burning and my salivary glands are still working overtime. This would be terrible if it wasn’t so typical for me. I detailed and dialed everything out except for this! The good old 50 mg of Benadryl has had me pretty much comatose all day on the couch. I woke up from time to time in the fugue state and tried to drink something cold to abate the fire in my mouth then fell out again, LOL. I’ve restarted the same movie 3 times! After I became conscious again about 45 minutes ago I started thinking ……I think it probably should’ve been drops and not milliliters. So I got back on the old handy Internet and went back to the drawing board to see what the heck I could do tomorrow because I’m supposed to take it again. I know there’s no way I can do that again tomorrow . Guess what I found?? It was supposed to have been three drops or six drops depending on who’s protocol you read not teaspoonfuls . Like I said, DA move on my part!
You should’ve seen Layla and the other dogs. She sat bedside me while I was lurching and wretching, ever watching me unphased by the sight. She’s got a lot of experience with my physical warfare over the last eleven years, haha. The fact that almost nothing grosses out a Lab helps. The rest of the pack were deserters! Well except Annabelle she just walked around with her balls in her mouth on the periphery as usual. Anytime one of us sneezes loud the others clear the decks! LOL…..I’m pretty much in good shape, except for my poor mouth and sad little tastebuds. Hey, maybe I’ll lose some weight!
Don’t lose your peace and have a great day! Staying strong and finishing strong on this end!